When will I go blind?

If a camera can be compared to an eye, a disintegrating negative can be compared to a diseased retina. In this work, When will I go blind?, I use antiseptics, dry eye ointment, and boiling water to disintegrate images that feature the people, places, and things that bring me joy. As a photographer with Bardet-Biedl Syndrome, I am terrified and anxious about losing my vision. Without being able to see, I will be limited to my visual memories and not be able to engage with the world the way I used to. What will happen if these memories fade? Will I lose part of myself by having to engage in the world differently? I made this work while I am still sighted as a coping mechanism to process the initial stages of the disease. I hope this work connects with others who have gone through something similar. For people who have never experienced anything like this, I invite them to visualize and feel my fear of loss through this work.